It’s a given that kids who cath want to be like their friends at school. When 5-year-old Norah Kerr was ready to go to kindergarten, her parents sought out ways to help their daughter learn to cath independently with as little assistance as possible while in class.
Norah was born with Spina Bifida and her parents, David and Amanda Kerr, recently shared their story of success with us. We hope their experience will empower other Wheel:Life families who have children that are learning how to self-cath too!
MEET AMANDA KERR: A MOM ON A MISSION
Norah is a happy, active kid with a smile that will melt your heart. She just happens to have Spina Bifida too. As the time approached for her to start kindergarten, her mom was on a mission to make sure her school experience would be as “normal” as possible.
Amanda Kerr and her husband David have always been their daughter’s biggest advocate. Like many other parents of children with disabilities, Amanda and David know that so much of their daughter’s quality of life relies on their knowledge of diagnoses, related conditions and allergies, available therapies and medical products.
A huge part of going to school for any kid is about finding their independence. As children learn to do things on their own, it strengthens their character by building confidence and self-esteem.
Amanda knew that Norah’s ability to self-cath would impact her school experience in a big way.
Unfortunately, the catheters that Norah had been using didn’t seem like the best option for Norah to learn to cath herself. Amanda also was frustrated by a lack of kid-friendly, easy to understand information about kids and self-cathing, so she set out to find the help they needed.
“I was on the hunt for resources to support Norah and educate the school staff,” Amanda recalls.
FINDING A BETTER CATHETER OPTION FOR NORAH
In Amanda’s research, she came across a free resource from Cure Medical. It was a backpack filled with educational materials created especially for kids who are learning to cath. It was exactly what Amanda had been searching for – and more.
In the past, they had been given a book and some medical materials about catheterization, but the information in Cure’s kid-friendly kit was presented in an entirely different way that was much easier to understand. That’s because the Cure Medical pediatric education resources were developed by a team of nurses who work with people who have spina bifida.
Norah is the first child with spina bifida at her school, so we needed to educate the staff. Cure’s backpack with included materials have been helpful for EVERYONE.
Cure Medical educational backpacks for children contain:
- Educational guides for boys and girls
- Flash cards for parents to use as teaching resources
- Coloring book + crayons
- Hair bows for girls, toys for boys
- Non-branded, discreet backpack in pink or blue
THE CURE MEDICAL DIFFERENCE FOR NORAH’S SELF-CARE
The more Amanda learned about Cure Medical, the more interested she became.
Not only was Cure Medical located in the Kerr’s home state of California, but she also appreciated that 10% of Cure’s net income is always donated to spinal cord research. That knowledge compelled Amanda to order a free sample of Cure catheters.
“To be honest,” Amanda explains, “we didn’t realize there were even other companies making catheters other than the brand that we had been ‘assigned’ when Norah started cathing. We weren’t given any options. The catheters we used previously were super long and rigid, and just not a good option for Norah if she wanted to be independent.”
Healthy self-care includes seeking out another style of intermittent catheter if the one you are currently using isn’t working well for you.
VIDEO: INTRODUCING THE CURE PEDIATRIC HYDROPHILIC CATHETER
After receiving Cure Medical catheter samples, Amanda and Norah were convinced. They felt Cure Catheters were higher quality and much more user-friendly than what they were previously using.
The Kerr family liked the pediatric catheter option from Cure Mecial but were also surprised to find that using the Cure Twist made a big difference in Norah’s ability to cath independently. By choosing to use a product that worked better for her, Norah was actually having a say in her own self-care for the first time.
Norah explained herself why she likes the Cure Twist, “It is FANTASTIC! They’re short so I can do them!”
They don’t make a lot of noise and they’re easier for me to open with the little cap.
Amanda says they also appreciate that the Twists are pre-lubricated and not messy – and the size and style of the container allow Norah to be discreet.
NORAH GAINED HER INDEPENDENCE TO ENJOY A POSITIVE KINDERGARTEN EXPERIENCE
Today, kindergarten is going very well for Norah. Thanks to Cure catheters and a little education, Norah doesn’t have to be separated from her peers to use the restroom.
No more having to depend on diapers or a special room with a changing table!
“With cathing,” Amanda shares, “Norah has been able to maintain social continence, which is a big deal. She uses the regular bathroom, just like the other kids in her class. Cure has made all the difference.”
We are so happy to see that Norah not only feels more confident among her peers, but that she’ll have more time and freedom to be a kid!
Contact Cure Medical here to request a free sample of their products or to request a complimentary educational backpack for kids.